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Kalydeco

Tuesday, May 8, 2012

A Dedham Family Fights for a Cystic Fibrosis Cure

The annual CF walk comes to Dedham on May 20 as the Coughlins and thousands of other families seek to find a cure.

  Bob and Christine Coughlin have participated in the annual Cystic Fibrosis Walk in Dedham since the walk's second year in 1996. Little did they know at that point that their push to raise money for Cystic Fibrosis research would grow stronger. "It was an ironic twist of fate," said Bob Coughlin. "We were involved in a fairly rare disease, and then it got real personal, and we've stepped it up." In 2002, the Coughlins had Bobby, born with Cystic Fibrosis. And ever since that day, the now 10-year-old bottle of energy must go through a daily regimen of taking enzymes, other medication and using a nebulizer. If he doesn't, he could be in trouble. The combination thins mucus build-up in Bobby's body, which can cause dangerous and painful …

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